This wellness.com website has a wonderful page for explaining Trisomy 13, and the suggested treatement. Treating the child, each as an individual.
General Information http://www.wellness.com/reference/conditions/trisomy-13/ Signs Symptoms and Causes http://www.wellness.com/reference/conditions/trisomy-13/symptoms-and-causes TREATMENT http://www.wellness.com/reference/conditions/trisomy-13/prevention-and-treatment
So often sites have information with an agenda.. this site offers clear information as each of these kids present trisomy 13 differently. As in my child. With some medical intervention, she has a true spirit of JOY that comes with this unique syndrome ThereseAnn, mom to Natalia http://livingwithtrisomy13.org/album14.htm
Come meet more (90+) amazing children living with trisomy 13 http://livingwithtrisomy13.org/trisomy-13.htm
Come meet our wonderful Treasured Memory Families, who with Grace and Courage, carried to term to love and meet their beautiful children. Sometimes it was very brief, for others the hours turned into days, months or years. http://livingwithtrisomy13.org/trisomy-13-memory.htm
Please keep in prayer all our LWT13 families espeically those carrying to term, our Prenatal Families. http://livingwithtrisomy13.org/trisomy-13-prenatal-photos.htm
And look around, we have an amazing community of amazing families. http://www.livingwithtriosmy13.org
I’m married, mom to four great kids, the youngest living with trisomy 13. Now 9 yrs. She’s amazing, happy and walking with help.
Come meet more of our Amazing Trisomy 13 families.
http://www.livingwithtrisomy13.org
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